Descrição
Parents of children with Niemann Pick Type C, NPC, hope a company is willing to manufacture adrabetadex, which they say helps their kids.
Fundraiser by Sara McGlocklin and NPC Mamas : Save Our Medicine
Brodie's Journey With NPC 💙
Community News – NNPDF
Experimental Treatment for Rare Children's Disease to be Discontinued – NBC Los Angeles
Parents of kids with Niemann Pick C advocate for adrabetadex
Parents Receive News That Their Child's Niemann-Pick Disease Medication Will be Discontinued - Patient Worthy
Hope For Marian - Our metabolic geneticist was on leave since January when all this went down. He just came back, walked into our appointment and said, “we cannot lose this treatment.
Brodie's Journey With NPC 💙
Save Our Medicine:” Fighting for NPC Med Access pt. 3 - Patient Worthy
Community News – NNPDF
September 2020 – NNPDF
Family Support & Medical Conferences – NNPDF
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